#45 Update, June 20th

Long week with slow and steady progress. Sean was evaluated by the speech therapist team on Monday and had his first session on Friday. There are a lot of positive areas and several areas that need work. He can read a newspaper but doesn't always comprehend everything. They will begin to work with him 3 times a week in addition to the physical therapist and occupational therapist, which each come twice a week. He continues to amaze us with what he can do, remember and strives to do. His hands are getting much stronger, he works extra hard to get more control of his right one. He can't write yet but he is able to make marks on a page which is a start. He went to the barber with Paul last Saturday and got his hair cut but still has a full beard, we took photographs just in case he wanted it shaved. His blood is back where it should be for thickness since he was off of his medicine when his peg tube was taken out. He fell for the first time and scared the daylights out of us. He was getting up to go to the bathroom on his own and lost his balance. His hands were red and he was sitting on the floor when I got to him but no blood which I was VERY thankful. We walk several times a day still to add stamina and go out on various short errands in the car. Sean and Delaney are still very tuned in to one another and share each other's activities. He has started to wear his own underwear for which he is very proud and enjoys.