Monday, March 30, 2009

#24 Update March 30th

Today was an unusual day for Sean as we were there to see him about noon. I fed him some pistachio pudding that Paulette had made and he really enjoyed it. We haven't seen him so frustrated for a long time; he was running a bit of a fever and not letting the nurse take his blood pressure. My sister Mary Lou and niece Anne got to visit for about 5 minutes as he was having a challenge and unable to explain what was upsetting him. He had 3 good therapy sessions today and walked a lot. The therapists are mainly there to steady him. They took him down the hall to the elevator, then had him walk around the first floor gym and back again, which is a pretty long walk.

Friday, March 27, 2009

#23 Update March 27th

After the blizzard from yesterday it was a treat to see Sean this afternoon. He was talking and walked a lot today. He graduated to chopped up pieces about 1/2 inch in size of chicken, mashed potatoes, mixed vegetables and applesauce. He can also suck out of a straw. I stayed to feed him and it was delightful to share the time and meal with him. He was hungry and has eaten 100 % of all of his meals today. His nurse asked him what branch of the service he was in Navy, Army or Air Force and he answered Air Force. He is making small but noticeable steps forward. He will always be one of our best achievements in life no matter what. Between him and Delaney, she "talks" more but we understand more of Sean's words; someday soon hopefully they'll be even.

Thursday, March 26, 2009

#22 Update March 26th

Sean is relearning how to take food! He had some "nectar" yesterday without incident. Not a sirloin, but we all have to start somewhere, I guess.
We met other caregivers of brain-injured people in a support group yesterday, and we feel humbled by what these people have gone through after traumatic brain injuries--falls & auto accidents in the crowd we were with. If we didn't process that this is a marathon, the experiences we heard last night brought that home. The doctors tell us that the first six months or so will bring the greatest healing and learning; due to the coma that Sean was in, that six-month clock really didn't start until he arrived at Spaulding. Thanks again for the prayer groups that you all have added Sean's name to, and thank you again for the individual prayers and positive thoughts directed our way.
Due to a springtime blizzard here in Colorado, we aren't going up tonight, and we might stay home tomorrow as well. Saturday is forecast to be bright and sunny, though. We call the hospital to see how his day is, and what new things he is doing. All the best to everyone.

Sunday, March 22, 2009

#21 Update March 22nd

Yesterday he wasn't talking very much. Today he stood by himself for a few minutes while they were transferring him to his walker for physical therapy. He can walk down the hallway with assistance and "walk" himself down the hallway while sitting in his wheelchair. He was talking a lot more today and a good percent of the words you could understand. Sometimes when you ask him a question you can see him processing it, if you wait you might get an answer. I read him some of his Consumer Report Magazine. He listened and sometimes made comments which was great.
Thank you again for your continued prayers and support.

Thursday, March 19, 2009

#20 Update March 19th

Before I share today Thank you to Aunt Judy, Bev, Sheila and Paulette who brightened Sean's St. Patrick's Day by their thoughtfulness.
Today was both informative and challenging-knowledge is power yet it still hurts.
Sean's brain damage is located in the middle of his brain the Caudate nucleus and Globus pallidus; both the right and left side are affected. The middle of the brain is the control center for the other parts of the body. The high functions are not affected except by the overall control he needs from the center area. There is no time table for how long it will take or how much will heal at this point. Usually the first 6 months are the most healing but it can take a year to 18 months as well, time will tell. How long it will be before he is discharged from rehab is unknown as well. He is responding and progressing but it is definately a journey.

Wednesday, March 18, 2009

#19 Update March 18th

Sean isn't sleeping very much only about 3 to 5 hours a night. Today he walked up and down the hallway and I understood him when he was telling me about it. He was talking a lot today but the nurse and I were having trouble understanding him. Paul and I go see him tomorrow during his physical therapy and speech therapy sessions so maybe we will be able to learn more then. The rash he has been dealing with on his legs is doing a lot better and he isn't itching so that is GREAT!

Monday, March 16, 2009

#18 Update March 16th

Today was the first full day of therapies for Sean and he did AMAZING! He has 1 hour of speech, 1 hour of physical and 1 hour of occupational each day and we were there to watch occupational today.
He didn't sleep very well last night 3 hours at most. Probably because he wasn't understanding what is happening & where he is at even though we tried to explain it to him. They took him off all of the sedating medications so that he is fully awake and able to process as much as possible. He has been very emotional, it is hard to see him so upset. The therapist said that whatever their disposition before they had brain damage is greatly exaggerated afterwards. They(his team) can tell that Sean has a big heart, is tender and loving by his emotions.
Last night we told him he could come home after he learns to walk and eat again. Before we left he told us he wanted to walk. We can only stay for 15 to 20 minutes now. As he progresses we will be able to stay longer.
He walked up & down the hallway 4 times behind his over sized wheel chair with assistance. He read all of their names aloud from their badges, the team was impressed. He spelled "deer hunting" to the nurse as well.
He was less emotional today with us, excited to see us and actually said, " I will learn to swallow again." When we told him goodbye, we'd see him tomorrow and we loved him; he repeated he would see us tomorrow and he loved us and didn't cry. We think after having his therapy sessions today he understands he needs help to learn to do things again. It was so much easier leaving him tonight, he is at the right place and moving forward. Thank you for continuing to pray for him and us it helps so much.