Due to the snow, this was the first time we'd been up to see Sean since Wednesday, and he is still doing well. We got to take him around the hospital in his chair, and fed him both pistachio pudding and his regular supper. If the weather had been a few degrees nicer, we could have taken him outside, but that will be coming very soon.
Tuesday will be the first "formal" team meeting with his therapists. We've spoken to them all individually, of course, but we will be sitting in on their daily meeting where they let each other know about what Sean has been doing in the individual sessions. The communication among nursing and therapy staff really seems to be excellent here, which helps the healing process tremendously.
Sunday, April 19, 2009
Wednesday, April 15, 2009
#30 Update April 15th
Sean had a great day! His appetite is back; he ate 2 helpings of his dinner tonight. He is working really hard and making great strides. He is able to sit up for hours at a time now and occasionally only needs one person to help him with his walking. We asked him if he wanted to get a haircut today and he said "no". Not to brag but when the nurse asked him what kind of cooking he liked best he said "my Mom's".
Saturday, April 11, 2009
#29, April 11, 2009
Sean has moved up a room, from the stimulus-controlled section to a room with more of a view (of I-225) and a little more room. Tonight, we helped Sean walk from his bed to the restroom and back, and Andrea and I fed him his supper. His walks are with help, but not necessarily with mechanical support. He can go up stairs pretty well, but has trouble going down the stairs. The staff has mentioned several times that we seem to be having a good effect on him; he is less likely to balk at their attempts at helping him or giving him medications through his feeding tube than before we arrive.
We're hoping that either we can walk him to the dining room or that he can come out there to see Delaney tomorrow. When she is in the ward, she sometimes gets a little loud, and we don't like to feel that we're bothering the other patients.
Thanks as always for your prayers and positive thoughts; we feel that Sean is responding to them.
We're hoping that either we can walk him to the dining room or that he can come out there to see Delaney tomorrow. When she is in the ward, she sometimes gets a little loud, and we don't like to feel that we're bothering the other patients.
Thanks as always for your prayers and positive thoughts; we feel that Sean is responding to them.
Wednesday, April 8, 2009
#28, April 8, 2009
Andrea was able to feed Sean his supper tonight. He's progressed to the point where he can have pretty much anything he wants; in fact, the aide told us that he'd picked out his meal this evening. Somehow he got salmon and asparagus on the plate, and he didn't really care for them. He's a lot more alert today. We think that the doctors have been adjusting his medications to help him be more in tune with his surroundings. His speech is improving as he regains control of his tongue and lips. The therapists are also happy with his progress.
Monday, April 6, 2009
#27 Update April 6th
Sean is doing better, he seems to be processing a lot. Some of the answers to questions are coming a lot faster. Granted these are yes or no answers but that is a huge step. He is very tired lately so we are hoping that is due to processing more and his brain healing more. He told us 1 + 1=2; there are neat windows of light that some signals are there, working and we are hoping/believing with more to come.
He is not as combative, mainly he wants to do things on his own so he can come home. He told us yesterday that they won't let him come home. We were able to help him understand that he will be able to come home as soon as he is capable we promised. He had to promise that he would let them help him get better so that it could happen faster. A "I promise, you promise" exchange and he understood and repeated "I promise, you promise" back. He has gained back some of his weight loss so that is good.
The biggest thing that has upset him lately is he now understands it is April and he has been in hospitals since January. Bless his heart!
He is not as combative, mainly he wants to do things on his own so he can come home. He told us yesterday that they won't let him come home. We were able to help him understand that he will be able to come home as soon as he is capable we promised. He had to promise that he would let them help him get better so that it could happen faster. A "I promise, you promise" exchange and he understood and repeated "I promise, you promise" back. He has gained back some of his weight loss so that is good.
The biggest thing that has upset him lately is he now understands it is April and he has been in hospitals since January. Bless his heart!
Sunday, April 5, 2009
#26, April 5, 2009
We went up today to see Sean, and he was sitting up on his bed, with his feet on the floor. Andrea brought along some tapioca, which had too many "pearls" for him to be comfortable with. We explained the best that we could that he needs to be able to do more things for himself before he can come home. Tomorrow will be a chance to meet with his therapists to set some weekly goals for him. It's our hope that if he understands that he needs to do more than walk and swallow before he can leave, he'll be more cooperative with the therapists and staff. Thank you all for keeping us and Sean in your prayers.
Thursday, April 2, 2009
#25 Update April 2nd
Sean is improving but is extremely frustrated as he has had to relearn the basics of life. They are trying new medications to help with the movement he has that is like but not Parkinson's disease. The new medication made him combative and so they stopped it and will try something else. He has another urinary tract infection as well. April Fool's day was a blustery winter snow storm for us but seeing him and being able to calm him made the trip all worthwhile. Thank you again for your warm thoughts and prayers; it is making all the difference.
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